Seth believes that life presents all of us with challenges, but if we continue to work hard and think positively, good things will happen. With the help of nuwiq® by Octapharma, Seth overcomes his struggles with Hemophilia A and inspires others with his athleticism and spirit.
At age 28, Seth Rojhani is living proof that anything is possible. When he was just 6 months old, Seth was diagnosed with both severe Hemophilia A and cancer. A complication during tumor removal surgery caused T-2 level paraplegia, leaving Seth in a manual wheelchair ever since. “My situation was unique. Hemophilia was definitely a major issue, but there were other issues at the forefront for us as a family.”
As a Patient Educator for Octapharma, Seth shares the tools and resources that have allowed him to successfully maintain an active lifestyle while managing his bleeding disorder. “I love sports. Growing up, I was extremely active and I always wanted to do anything athletic. But from an early age, I was told ‘no’ because of my hemophilia. My mom and I had to really educate people on hemophilia and how it’s not something that will hinder you from doing a lot of things – as long as your treat your condition properly.”
Today, Seth lives in Denver, Colorado, plays for the Denver Rolling Nuggets as a part of the National Wheelchair Basketball Association, and is a Paralympics bronze medalist with Team USA. He also coaches the Denver Jr Rollin’ Nuggets team.
Seth switched to nuwiq® 3.5 years ago. He was previously on rFVIII, Xyntha® for 8 years, using a prophylactic regimen 3 times a week. “I was having some bleeds, and I wanted to reduce them. When nuwiq® came on the market, I hoped it would be a better choice for me – so I made the switch. The fact that it’s produced using human cells rather than hamster cells was also a factor.”
“For me, nuwiq® really helped me put an end to the breakthrough bleeds that would sometimes limit me. Now, when I play basketball, I make sure to infuse before every game.”
Seth is on a personalized prophylaxis regimen. He describes the process of pharmacokinetic testing as relatively easy. “For me, it took just one day of testing. It’s been almost 4 years since starting on a personalized prophylaxis regimen, and it’s working for me very well. I have a good relationship with my physician and hemophilia treatment center. They know how active I am and understand the best way to treat me.”
“When talking to patients about nuwiq® I ask first if their current treatment is working for them and are they happy with it? Are they happy with the results they’re getting? From there, I will go into my experience with nuwiq® and how it’s worked for me.”